Childrens Liver Disease needs more publicity to create awareness

My son Luke lived his whole life with liver disease. He was a wonderful boy ,who was adored and loved by everyone who had the pleasure of knowing him. Luke had Cirrhosis of the liver and was diagnosed at a young age, Lukes Cirrhosis was deemed genetic as in many cases of childrens liver disease the cause is often unknown. Sadly Luke lost his life aged 12 years due to developing Hepatopulmanary syndrome because of his liver disease. More awareness needs to be raised as many people dont even know children can get liver disease, Lukes whole life i had to explain that i never touched alcohol throughout my pregnancy as people associate Cirrhosis with alcoholics, not that it means scarring of the liver. Many people are aware of other childhood diseases like cancer, yet more children are diagnosed with liver disease every year. So all parents,granparents,friend

s even doctors should tell as many people as they know to create awareness of CLD , public awareness, charity donations are all things which could help with research and also help children and families suffering the effects of CLD.